Foolishly, I believed that my husband coming home would make life easier. When we brought him home, he didn't need 24 hour care, the doctors felt that he could care for himself. Now, this was true, but I wasn't sure if he would remember to take his medications on time (there were about six or seven of them) to be taken at several different times. Would he eat, would he try and cook and burn down the house?
My husband has a condition called aphysia, basically his brain doesn't make the proper links to communicate and understand words. When my children asked him "Daddy do you love me?" He would answer "No" and didn't understand why this upset them. If asked for a spoon, he would look at me like I was from outer space! My husband had to relearn the language and what words meant. He could understand the tone of your voice so he knew if it was a question or a statement, but most of the words made no sense to him, this was very frustrating for us all. He went to speech therapy three times a week on top of neurology appointments pulmonology appointments neurosurgeon appointments and then I found out about acupuncture, so we added those appointments to the rest.
My husband was so tired of Doctors. My children and I would work with him on speech, we would make him say words over and over and show him pictures so the word would make since to him. We sing the alphabet song with him like you do in kindergarten, nursery rhymes are good for learning speech again. This was a hard time on all of us, my husband did not understand what we were saying, we didn't understand what he wanted or needed, his first sentence that he could say and we could understand was "I'll show you" he had to show us everything, then we would teach him the words that went with what he wanted to say.
Eventually over time, he continues to get more words and understanding. Little by little the doctors took him off of most of his medications. The doctor told us that he could probably be taken off the seizure medication, because he only had one seizure after the crainiotomy and has not had any more problems, that was in December of 2006. So, I watched my husband like a hawk to make sure we did not see any signs that he may be about to have a seizure, like involuntary jumping in the limbs and drifting off. I was scared all the time when I was at work that he would have a seizure when no one was home. When I came home from work and called him on my breaks, he would say fine, fine when I asked him how he was.
He would mow the grass, he was so bored, everyday. He mowed every lawn in the neighborhood, I would tell him stop doing that, it's not safe, your gonna get too hot, 'fine, fine' is all he would say.
May 30,2007 I got another phone call at work from my daughter, she was once again in a panic. She screamed into the phone Mom, I think Daddy had another stroke, he had been outside all day in the heat and had forgotten to eat and hadn't had anything to drink all day. He was having fun hanging out with my brother in law. I
can't explain the feeling that comes into the pit of your stomach when you get those phone calls. When he came inside he decided he needed to walk to the store to buy gas for the lawnmower so he could once again mow the lawn. My children didn't want to walk with him so he decided to go by himself, he got over heated and had a seizure in the middle of the street, the trashman found him. They knocked on every door until they found the right house, back to the hospital we go....